Well things are falling into place...to us with EDS that's both good and bad. See I went to my PCP today and well things Fell into place as far as the MRI and such goes and I also was so tense and stiff and Hurt so darn bad that as I was getting ready I Fell into.. umm ..I mean out of place and pop a hip...and so goes another Friday morning.
The Dr appointment went well, MRI is Monday night so I can be medicated so I will be comfortable, I don't mint the little tube of death or the pounding sound of doom its the pain of laying on a hard table for that long I could never take, so I have to take something... by having it at night I can take something and Pokeys Dad can drive. I also got "accepted" by the Ortho doc that I "picked" out. ( I say picked because I had to sift through many that would not only accept my insurance...and its good insurance, but one that had some specific credentials too...I'm just picky like that...insurance was a hard one though..but that's a whole other blog..) I was overly excited because they had not even received a copy of my reports from my last hip guy, the doc just literally listened to my "pleading" voicemail and agreed to see me! Wow! When the lady called to schedule she even said "now we are seeing you for your hips first as this is your most pressing issue, correct?"...that means this guy is even willing to see me for other things, my shoulders, knees! Oh my! =) Now I'm not expecting miracles or anything like that, I am fully aware there is no fix but I am determined that there is a better way. Sometimes I feel like pain could drive me insane but in the end it never does, there is always a way to cope, occasionally I give in to the pain meds because... well I have to. Sometimes I just grin and bear it but I tell ya what like I said I'm determined that there is a better way, plain and simple, theres just a better way.
So for some reason my computer decided to shut down twice on Friday night while I was posting so its now Sunday. We spent Saturday in Yakima at my moms, then went to my brothers and had a great time. Now we are home again ready for another week, whewww. Well I have a pretty important Dr. Appointment tomorrow...the social security one, wish me luck, ha! Oh Pokey and I follow a bolg of a little girl with EDS, (her mom keeps her blog), well she has a friend with EDS that is in a singing contest...well if you feel obliged to do so please vote for her... http://www.galesburg.info/davesidol.html we found this on Thursday and were able to vote twice as we noticed it at the chicklets house (you can only vote from one ip address a day) and have since voted many times..... but come on help this little girl with EDS win this small town version of "Idol" Her name is Samantha. Thanks!
I'm Praying for some answers.
I'm Thankful for my family.
I'm Hopeful for more answers.
Mommy Zebra / Gumby
Showing posts with label Pack Pain. Show all posts
Showing posts with label Pack Pain. Show all posts
Friday, August 14, 2009
Thursday, August 13, 2009
Grrr...
I'm just frustrated....Ha!
Don't get me wrong, I love my PCP...But I just don't understand why I must see Him EVERY time I need a referral to go somewhere. Politics. Why, so he can get yet another 15 bucks out of me. I am simply trying to get in with a spine surgeon because after 12 years on on and off lower back pain / sciatica for my "degenerative disk disease" I have now had an episode last for 6+ weeks with no relief, clearly it is not going away this time and needs some intervention. During the last 12 years I have had flair ups that at their worst would last about 2 maybe 3 weeks but never ever this long. I have indeed seen my doctor for this problem, and being only my PCP there is not much he can do other than heres some Pain meds ( no thanks I have plenty.....and or some muscle relaxers...Those are almost something harder to take, I need to relax yes I agree but If I relax too much...dun dun something else might come out! hahahahah ). So here we go I found a Spine Surgeon, one that actually accepts my insurance, at a hospital that I like, and of course there is a stipulation...I have to have a recent MRI to even schedule. But of course I cant just go get one, I have to have a referral to get one...can I just call my doc and get a referral..no...I have to get up early tomorrow morning and go see the fellow and chat with him about my buttback hurting and then have him hand me the magical form of MRI goodness. Phew. To add to all of this I'm also trying to get a second opinion on my subluxing hips because I just cant stand them anymore....they are painful, the left more than the right, and the left side is where the back pain is as well. They are two distinct pains so I know its just not one in the same. To get into this doctor he has to review everything from my last hip guy and see if he will accept me. Funny thing is they usually refer many of their patients to the last guy that I saw!! I left a pleading message on the guys voicemail about Ehlers-Danlos and that I hope he will be willing to work with me at finding a solution to this complex problem. Cross your fingers for me. Grr. Well at least my new Sacro-Iliac belt is on the way and will hopefully provide some relief....sheesh you would think that the doc writing me a script for a frickin new brace less than a month ago he would just write the darn MRI referral but noooo......grr again.
Mommy Zebra / Gumby
Don't get me wrong, I love my PCP...But I just don't understand why I must see Him EVERY time I need a referral to go somewhere. Politics. Why, so he can get yet another 15 bucks out of me. I am simply trying to get in with a spine surgeon because after 12 years on on and off lower back pain / sciatica for my "degenerative disk disease" I have now had an episode last for 6+ weeks with no relief, clearly it is not going away this time and needs some intervention. During the last 12 years I have had flair ups that at their worst would last about 2 maybe 3 weeks but never ever this long. I have indeed seen my doctor for this problem, and being only my PCP there is not much he can do other than heres some Pain meds ( no thanks I have plenty.....and or some muscle relaxers...Those are almost something harder to take, I need to relax yes I agree but If I relax too much...dun dun something else might come out! hahahahah ). So here we go I found a Spine Surgeon, one that actually accepts my insurance, at a hospital that I like, and of course there is a stipulation...I have to have a recent MRI to even schedule. But of course I cant just go get one, I have to have a referral to get one...can I just call my doc and get a referral..no...I have to get up early tomorrow morning and go see the fellow and chat with him about my buttback hurting and then have him hand me the magical form of MRI goodness. Phew. To add to all of this I'm also trying to get a second opinion on my subluxing hips because I just cant stand them anymore....they are painful, the left more than the right, and the left side is where the back pain is as well. They are two distinct pains so I know its just not one in the same. To get into this doctor he has to review everything from my last hip guy and see if he will accept me. Funny thing is they usually refer many of their patients to the last guy that I saw!! I left a pleading message on the guys voicemail about Ehlers-Danlos and that I hope he will be willing to work with me at finding a solution to this complex problem. Cross your fingers for me. Grr. Well at least my new Sacro-Iliac belt is on the way and will hopefully provide some relief....sheesh you would think that the doc writing me a script for a frickin new brace less than a month ago he would just write the darn MRI referral but noooo......grr again.
Mommy Zebra / Gumby
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