Monday, February 1, 2010

My Loot!!

So There are a few blogs that I follow on a regular basis...I also enter a few contests/giveaways just for fun...and why not..Im already online so I think I should enjoy myself right?? Well There is this one blog.... This Mom is pretty neat, she reviews Many many things and she has giveaways literally once a day!! I have already scored some awesome chocolates and now....a beautiful necklace!!

Is that not the neatest thing!!! I am so excited to get my neckalce I cant wait!! I have entered a few other giveaways over at Sugar Pop Ribbons and I think you should too!! Her button is over there.....on the right if the link is not working. =)

Have a great day!

Thursday, January 14, 2010

It is what is it...or not...?? I think NOT

My back/down the leg pain is still here..... I HATE it. They have not found any thing to help. Well lets up another med. Okay so now Im taking 19 pills a day not including any pain medication if I choose to take any!! Holy smokes BatMan thats insane! I am so frustrated ans so is my PCP. He never gets any updated from all these specialist, I mean I have had an injection in my SI joint and seen the neuologist and he has not had an updates since September! Oh and in the note that was said...I am sending her for a CT meylogram Which I expect to be normal....gee thanks for EXPECTING nothing to be wrong.

WTF...sorry for the language...I just dont get it. I have pain, there HAS to be something wrong. Its NOT going away there has to be something wrong. So he sent me to do this Nerve test...there were points in the test that hurt so bad and I was like YESSS thats the spot...and the Dr. was like "oh everything is totally normal, I wish I had a sutdent in here to show them" could it be normal...20 out of 25 spots tested felt fine but the other 5 were painful and felt like THE SPOT to me and your telling me everything is is that possible!! I just want to yell...Okay Dr. D you know eveything thing its have ran everyt test....what do you think it is?? Just nothing...just my imagniation...sorry I am very very aware that it is not...if it was i would imagine it away in a heartbeat! Again this is a problem that use to come and go...for 12 YEARS...then all of a sudden it is non a rope that started to fray over the years then finally snapped....I am just having a hard time thinking there is nothing wrong at all....My PCP said if The doc has no answers the next step is a pain specialist and for some reason I just feel like there should be some other route, there should be an answer...I guess thats why I am not a doctor.

This darn potassium stuff is driving me nuts as well. I had not had any muscle cramps for a week or so and then all of a sudden last night they came back with a vengence!! I dont know, I know I dont want the kidney stones but I also would like to not have the horrible muscle cramps every where as well.

I have managed to inflame the joints in my chest as well. That chest pain for a few weeks and its just been getting worse. Its mainly on the right side and horribly uncomfortable. My chest does crack all the time, even more so and painfully so when I wake up so when I saw my doc yesterday he reassured me it was just a good ole connective tissue problem, where the ribs connect. FUN! Yeah and of course after I saw him yesterday I swear it got worse last it feels just super tight in addition to painful. It feels like someone is squeezing my chest and sitting on it...Its hard to explain..its like my chest muscles are super contracting everytime I breathe... and I had been having a fast heartbeat and now it feel like my heart is going slow, slow a sloth...Yeah Im weird...whatever it is it made it impossible to sleep last night and of course I had to be over that the chicklets house early today.. It seems to have eased a bit so I took a nap this morning after Pokey and I sent them off to school and we came home, but its not gone. My PCP didnt seem to be too concerned about the so called changes theat were noted on the CT with the lunc bullae so I am going to postpone my cardio and pulm appts until april / may...for one I cant afford the co insurance payments right now and for two thats when I am technically due for my annual exams, echo and such.

Pokey and I are headed to my Grandmas tomorrow night, I need the Grandma and Grandpa time...hey I may be 29 but you are never too old for some good old grandparent love!! (aka spoiling)

P.S. My blog posting thingy use to have a spell checker on it and it has seemed to run away....does anyone know how to make it come home??

Wednesday, January 13, 2010

What Did we have for Dinner last night???

Subway!!!! Yummm....And why is that so special????

Because I won a 25 $$ Gift card from this blogger......

Yes her button is over there on the right.....

Shes got a pretty cool blog and shes here in the northwest!! Always has awesome Fred Meyer Deals and her Random thoughts are always fun to read!

Right Now she is having a Giveaway for Triaminic..I have entered and you should too. We use Triaminic Thin Strips for Pokey just about when ever we can when he is sick, because for one he HATES liquids..well Lquid medicines..something about the consistancy...and  hes not fond of these work great. There are night time ones, day time ones and allergy ones! They are even nice to stick into your wallet when on the go. So go check out her blog and hey enter her might WIN!!!

Sunday, January 10, 2010

I won me some Chocolate!! Check out this Awesome Blog!

So I entered a contest the other day and Guess What I won!! I am the Lucky recipient of some Cowgirl Chololates, "Cowgirl Chocolates are sweet and spicy gourmet chocolates for adventurous chocolate lovers and packaged as unique beautiful gifts for any and all occasions"!

It was over at  a wonderful site that has giveaways almost daily along with some awesome very honest reviews! Her Button is also over there....on the right! Give it a click and check her out, I think you will like it!

Here is the link showing my lucky win!!

Friday, January 8, 2010

Free Sample Links...Enjoy!!

Here are your free samples for the day...So Im still learning at this blogging business..some links you have to copy and paste....sorry. Enjoy!
Glade sense and spray...only first 3000....hurry
Some organic cereal

Dove Shampoo

Gas X strips

Post it durable tabs

Natural nibbles dog treat

Rachel Ray dog food

Thursday, January 7, 2010

2010..two thousand ten...twenty ten...two o one o......hummm...

Well Its another year...yipee.
Things are going okay. Pokey started off the year with a severe bilateral ear infection and a resp. fun for him. Hes on some antibiotics and doing a bit better, but as of today he still didnt make it to school... Did I mention he Fell down the stairs at Miss. N and Mr. W's place and popped a patella out to the side!! That was interesting…his are sooo squishy its unreal! Hes got quite a bruise around it and limped a little but by a quick straightening out of the leg and a little push it glided right back where it was suppose to be and didnt seem to hurt him that much! He did ask for some Motrin after a bit of limping then took it easy the rest of the day. When I took him in for the ears his Doc looked at it and was pretty impressed.
As for me while 2009 was ending and 2010 was beginning....I got yet again another stone...small one though. BUT I now know the cause of the stones ( they had me do a 24 hour urine collection and a heave duty blood work up) , I do not recall all the technical terms but it is something in regards to my kidneys and urine and all that what, the doc added 8 pills to my daily med regime...Potassium.. yum (not)! Holy Smokes! 8 more! Yeah I was like thanks! And I have to be super super strict on the non oxalate I cant eat anything good it just feels that way. Im also not putting out enough urine (sorry for the graphic post) only .75 liters a day and i should be between I nopw have to guzzle fluids fluids fluids. I also got the answer to why I swell up when I eat salt too.. it is all connected to this kidney business. So no wonder I felt like pooo and swelled up when they told me to increase my salt or take salt tabs for my POTS!! Glad I stoped that! Now I have to totally avoid salt as best I can. So did I tell you about the side effects of the potassium...muscle cramps....horrible everywhere...yikes!
So in addition to this I have had some strange heart problems lately also, tachycardia, just sinus tachycardia but still its annoying and exhausting, my resting rate has been consistent at 115-130. We even had a scary episode where I had to go in because I was all discomboberated and it was at 180,150,180,150...and I was having chest pains and such. There has been some changes in my CT with my Lung Bullae so Im seeing both my cardiologist and my Pulmonary doc later this month. I do have to ck my blood pressure and heart rate three times a day and keep records for all three docs (PCP included) .
My back pain is still there. I had an injection in my SI joint that did nothing for me and I am frustrated. There are many things wrong with the Right side of my spine and spinal canal but all of my pain is one the left side down the Left leg so the doctor is at a loss as am I. I also had a injection in my hip that DID help about 60%. It helped a lot of the soreness and it diminished the pain with the clicking / snapping but the outside of the hip (iliotibial band) is still so frickin sore. The Hip guy did want to go in and do surgery to release a tendon for the internal snapping hip but I declined for now. The back guy I will see again soon and I guess go from there, I cant even express in words how frustrated I am at this, clearly there is something wrong or else there would not be pain down my leg to my ankle so what the heck...maybe its just my when they gave me a epuridural when Pokey was born and the left side of my face went numb...things like that maybe yes the structural problems are on the right but I have the pain on the left?? I dunno just a thought. Im desperate to get the pain to GO AWAY!

I want all pain to go away really the last two months have been some tough ones joint wise, I have dislocated both shoulders and my right ankle and knee...(fell in the driveway re ankle and patella) Its just such a frustrating never ending cycle. It wears you down, i mean literally wears you down, exhausts your body physically and mentally. There were so many things I wanted to do and great plans I had over the holidays that just never got finished or never even got started for that matter, I just didnt have it in me.If it wasnt for My faithful Wednesday coffee buddy we would not have even had our famous peanut brittle fest this year!

Christmas was nice and hectic of course, but we got through it. The house is almost cleaned up, except for this one spot that keeps eluding the christmas box. This year I could never keep our decorations set up because as soon as I got them how I wanted them, Pokey would have to take about half of them into his room! He was pretty thrilled this year and of Course it was such a sad sad day to have to put his Santa Suit away until Next year.
I finally got my WII!!! I was sooo excited! I have to be so careful because I can totally see myself dislocating or subluxing something but at the same time I feel certian things will be beneficial as well. Im just excited to have the darn thing, after wanting one for so long. It was like when I was little and I wanted was a easy bake oven....yeah finally got it as a "gag" gift when I was like wasn’t that funny to me by then..I actually took it into my room and used every little mix that came with it! So any way with the Wii it actually does increase family time too. We play wii sports a lot...bowling.. Its funny though with the Tachyacardia I have going on I actually get winded bowing!!( well I get winded doing nothing too…but you get the point)...and its not like Im taking full strides...I just stand there! But its such a blast!...Also the new Super Mario Brothers!! Ohhhh that takes me back, I did manage to get the first nintendo one year for christmas ( my uncle worked for nintendo) and played the original Mario Brothers religiously!

We Spent new Years doing a bunch of nothing....playing Wii and Cards over and Grandma Julies...who is doing very well I must mention. She just finished up her second round of Chemo and the majority of her tumors have shrunk a significant amount, very very good news. I didnt make it to midnight, not even to 10! Pokey and his Dad did but then were out right after I was told.
My biggest wish for this year is to fix my back, it literally drives me nuts at times and I just cant go on like that. I mean it just seams so simple...there is pain ...there is a problem...right?? I also have to figure out this health insurance thing. My reduced rate on my COBRA ran out so Im back to paying 575$ a month!! Yikes...but when I look at the other individual plans out there they just dont compare coverage wise...and Lord knows I need good coverage!!...And of course our lovely state of Washington still has done nothing to improve their state healthcare, as a matter of fact they have made more even though I have been on the waiting list for a year, I am no closer to getting any coverage and I am just blessed that pokey is covered....I could go on about my Disability case...but I just gotta leave that up to my Lawyer!! Shes awesome and I just have to hope for the best!

So with all of that being said......Thank goodness for people who need childcare, family that are willing to help and Pokeys Dad for pulling most of our load....without all of that I dont know where we would be.

Thats my Lengthy update....wheeewwww.

Friday, December 18, 2009 that a wordd?

Hard week, well hard last two weeks. Glad Christmas break is here.

Here are some videos thought you might like.


Hoping to update this weekend. Best wishes to all.