Well Its another year...yipee.
Things are going okay. Pokey started off the year with a severe bilateral ear infection and a resp. infection...no fun for him. Hes on some antibiotics and doing a bit better, but as of today he still didnt make it to school... Did I mention he Fell down the stairs at Miss. N and Mr. W's place and popped a patella out to the side!! That was interesting…his are sooo squishy its unreal! Hes got quite a bruise around it and limped a little but by a quick straightening out of the leg and a little push it glided right back where it was suppose to be and didnt seem to hurt him that much! He did ask for some Motrin after a bit of limping then took it easy the rest of the day. When I took him in for the ears his Doc looked at it and was pretty impressed.
As for me while 2009 was ending and 2010 was beginning....I got yet again another stone...small one though. BUT I now know the cause of the stones ( they had me do a 24 hour urine collection and a heave duty blood work up) , I do not recall all the technical terms but it is something in regards to my kidneys and urine and all that jazz...so...guess what, the doc added 8 pills to my daily med regime...Potassium.. yum (not)! Holy Smokes! 8 more! Yeah I was like thanks! And I have to be super super strict on the non oxalate diet..so I cant eat anything good anymore...no it just feels that way. Im also not putting out enough urine (sorry for the graphic post) only .75 liters a day and i should be between 2-4..so I nopw have to guzzle fluids fluids fluids. I also got the answer to why I swell up when I eat salt too.. it is all connected to this kidney business. So no wonder I felt like pooo and swelled up when they told me to increase my salt or take salt tabs for my POTS!! Glad I stoped that! Now I have to totally avoid salt as best I can. So did I tell you about the side effects of the potassium...muscle cramps....horrible ones..um everywhere...yikes!
So in addition to this I have had some strange heart problems lately also, tachycardia, just sinus tachycardia but still its annoying and exhausting, my resting rate has been consistent at 115-130. We even had a scary episode where I had to go in because I was all discomboberated and it was at 180,150,180,150...and I was having chest pains and such. There has been some changes in my CT with my Lung Bullae so Im seeing both my cardiologist and my Pulmonary doc later this month. I do have to ck my blood pressure and heart rate three times a day and keep records for all three docs (PCP included) .
My back pain is still there. I had an injection in my SI joint that did nothing for me and I am frustrated. There are many things wrong with the Right side of my spine and spinal canal but all of my pain is one the left side down the Left leg so the doctor is at a loss as am I. I also had a injection in my hip that DID help about 60%. It helped a lot of the soreness and it diminished the pain with the clicking / snapping but the outside of the hip (iliotibial band) is still so frickin sore. The Hip guy did want to go in and do surgery to release a tendon for the internal snapping hip but I declined for now. The back guy I will see again soon and I guess go from there, I cant even express in words how frustrated I am at this, clearly there is something wrong or else there would not be pain down my leg to my ankle so what the heck...maybe its just my quirkiness..like when they gave me a epuridural when Pokey was born and the left side of my face went numb...things like that maybe yes the structural problems are on the right but I have the pain on the left?? I dunno just a thought. Im desperate to get the pain to GO AWAY!
I want all pain to go away really the last two months have been some tough ones joint wise, I have dislocated both shoulders and my right ankle and knee...(fell in the driveway re ankle and patella) Its just such a frustrating never ending cycle. It wears you down, i mean literally wears you down, exhausts your body physically and mentally. There were so many things I wanted to do and great plans I had over the holidays that just never got finished or never even got started for that matter, I just didnt have it in me.If it wasnt for My faithful Wednesday coffee buddy we would not have even had our famous peanut brittle fest this year!
Christmas was nice and hectic of course, but we got through it. The house is almost cleaned up, except for this one spot that keeps eluding the christmas box. This year I could never keep our decorations set up because as soon as I got them how I wanted them, Pokey would have to take about half of them into his room! He was pretty thrilled this year and of Course it was such a sad sad day to have to put his Santa Suit away until Next year.
I finally got my WII!!! I was sooo excited! I have to be so careful because I can totally see myself dislocating or subluxing something but at the same time I feel certian things will be beneficial as well. Im just excited to have the darn thing, after wanting one for so long. It was like when I was little and I wanted was a easy bake oven....yeah finally got it as a "gag" gift when I was like 15...it wasn’t that funny to me by then..I actually took it into my room and used every little mix that came with it! So any way with the Wii it actually does increase family time too. We play wii sports a lot...bowling.. Its funny though with the Tachyacardia I have going on I actually get winded bowing!!( well I get winded doing nothing too…but you get the point)...and its not like Im taking full strides...I just stand there! But its such a blast!...Also the new Super Mario Brothers!! Ohhhh that takes me back, I did manage to get the first nintendo one year for christmas ( my uncle worked for nintendo) and played the original Mario Brothers religiously!
We Spent new Years doing a bunch of nothing....playing Wii and Cards over and Grandma Julies...who is doing very well I must mention. She just finished up her second round of Chemo and the majority of her tumors have shrunk a significant amount, very very good news. I didnt make it to midnight, not even to 10! Pokey and his Dad did but then were out right after I was told.
My biggest wish for this year is to fix my back, it literally drives me nuts at times and I just cant go on like that. I mean it just seams so simple...there is pain ...there is a problem...right?? I also have to figure out this health insurance thing. My reduced rate on my COBRA ran out so Im back to paying 575$ a month!! Yikes...but when I look at the other individual plans out there they just dont compare coverage wise...and Lord knows I need good coverage!!...And of course our lovely state of Washington still has done nothing to improve their state healthcare, as a matter of fact they have made more cuts....so even though I have been on the waiting list for a year, I am no closer to getting any coverage and I am just blessed that pokey is covered....I could go on about my Disability case...but I just gotta leave that up to my Lawyer!! Shes awesome and I just have to hope for the best!
So with all of that being said......Thank goodness for people who need childcare, family that are willing to help and Pokeys Dad for pulling most of our load....without all of that I dont know where we would be.
Thats my Lengthy update....wheeewwww.
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