Well...last week was a hoot!...I managed to get my 4th bout of kidney stones since April...! Not sure what the deal is with those!....Let me tell you they are painful. When just about every joint in your body dislocates you think you have a high pain tolerance...nope, these little teeny tiny calcium oxalate stones, bring me to a tightly rolled fetal position on the floor writhing in the most pain I can imagine...and it comes in waves...like LABOR....yikes! grr.
Speaking of Labor....My little Pokey turns 5 tomorrow. Wow. I cant even begin to imagine it has been 5 years since I had a Dr. appointment and my blood pressure was too high, not to mention someone was already 4 days past his due date....So we checked into the hospital and they began to induce me. 5 Years ago today I began my journey bringing my son into this world and 5 years ago today he began to change my life forever.
Grandma Julie started her chemo last week, her medication cost over $8,000.00 and by being double covered with her and Grandpa Davids insurance she only had to pay her 15.00 copay! She was doing very well but managed to come down with pneumonia and was back at the hospital for resp. distress and pain.
Due to the Kidney Stones I missed the Light the Night Walk for my Friend Melissa, they raised a good amount of money and had a good time. Shes still having some issues with her breathing and they upped her prednisone again. For anyone who has ever been on that stuff you know how icky it is, so here's hoping she gets better soon, especially with flu season coming.
Pokey had his first fall at school, he tried running on the track and rolled his ankle then of course bit it and scraped his hand up pretty good. Luckily our neighbor boy saw him fall (hes in 2nd grade) and took him to the nurse. he let her clean him his wounds but he wouldn't let her touch his ring and pinky finger. He told her they bent back and he just wanted ice. She called me and told me he had been there for about 20 minutes but school was almost out so I told her to just have him wait there. He was guarding his hand and would not let me touch his fingers at all, I asked him if they popped and he said his little finger did but it was "fixed". It looked swollen and the nurse, said he told her the same thing but he just refused to let her look, he just kept telling her it fixed itself it fixed itself it just hurts!.. So I'm not sure what we were dealing with. He did not use the hand that day (Tuesday) and still would not bend those two fingers on Wednesday. We soaked them in some warm water and did some exercises and he seemed to feel better about that and then taped the two together since he was guarding them so much. He did end up with a small bruised area around the joint but today hes got all of his motion back so I'm not overally concerned. So goes our journey.
After Physical Therapy today, I'm going to Pokeys class to have cupcakes with them, they do not have school tomorrow so we get to celebrate his birthday today! Tomorrow I I'm going to grill the urologist about the kidney stones during my follow appointment, what the heck is going on! We are going to dinner with my grandparents tomorrow night to the Black Angus...Yum...Grandpa turned 80 on Monday and Pokey...who has grandpas name as his middle name ( Marion ) like I said will be 5 so it will be a dual bday dinner.
Please keep Grandma Julie, Melissa, Eithene,Carrie, Noah and Elise in your thoughts...and prayers.
Showing posts with label Ankles. Show all posts
Showing posts with label Ankles. Show all posts
Thursday, October 8, 2009
Friday, August 21, 2009
One step forward, two steps back... Or two Forward and One Back...
I think that's Murphy's law right?? I was so excited, I had all these Dr. appointment lined up and all set to go. I just should have known something was too perfect.
First the appointment with the social security doctor seemed to go alright. He was a nice man and didn't pull or prod on anything as I was scared of, was very gentle and seemed very educated on my situation. Of course he is not the one making the determination and I know I still have Weeks, to months of waiting for an answer.
Pokey had a Dr. Appointment as well, just a check up, he is starting school in two weeks so I needed to make sure his immunizations were all up to date, thankgoodness they were so he avoided any shots. Hes now 43 inches tall and 40.5 lbs. We addressed the problems hes having with his hands/fingers and both agreed that we will wait on any sort of ring splints for now and should just work with OT and his teacher about these issues. His ankles are another story, they are just so loose and he falls so much. Even on the way to the doctor he was simple getting out of the car and just stepped down on his ankle sideways and came crashing down onto his knee and was left with a gaping wound on the knee. After his doc wiggled his ankles around he agreed that they need PT and possibly bracing as well and are sending us to Children's Hospital to get started to the PT and go from there. We just have to wait for the referral to go through. Pokeys Dad and I were both relieved as its tough every time your kid runs or walks fast for that matter having to say...."be careful please"...then 8 out of ten times you watch him fall or roll his ankles anyway! He gets frustrated and is always saying "my darn ankle always tries to roll under!" and we just tell him he has to pay attention because his ankles will do that easier than other peoples.
My visit to the New Hip Dr was successful, he at least offered to help me, something the last guy did not even attempt to do. He labeled my hip problems as Internal and External Snapping Hip ( Internal: the iliopsoas tendon snapping over the iliopectineal eminence or femoral head (with or without an enlarged iliopsoas bursa), The underlying abnormality may relate to the size of the iliopectineal eminence or the position of the lesser trochanter // External: caused by subluxation of the iliotibial band over the greater trochanter of the femur ) So in the end he wants me to go through a rigorous bought of PT then if that does not work he did offer injections for the pain, surgery to release the "bands" can be done but I am personally against any surgery as they have not been successful in the past so why bother, I just want to be out of pain.
The Spine Surgeon was a disaster! I originally has an appointment on 9/8. I called back and agreed to drive all the way to Edmonds because I could just not bear to go that long in this much pain. My PCP has already reviewed my MRI with me and he is positive that in the least a nerve block has to be done if not more so needless to say I was so close to tears when I got up to her "office" just to find out she has not been there in over 6 months! I wanted to break down, but I had Pokey and two of the girls with me so that was just not an option. All the office manager could tell me was that, it was their fault, they gave their new scheduler the wrong information. That was no comfort to me. Now I'm back to 9/8, if I make it that long. I tell ya this back pain is literally making me angry at times it makes me irritable and just mad. I just want it fixed or numb or what ever, I just want it to go away. Ive got some major things going on down there: "Multiple Schmorl's Nodes within the lower thoratic spine, Bulging of the disc at L5-S1 with associated mild degenerative disc disease and small right paracentral focal bulge...Small annular tear. Bulging of the L4-L5 dics diffusely and L2-L3 asymmetrically to the right, and rightward curvature of the lowar lumbar spine." Woo Hoo... September 8th please come sooner than later! Haha!
On another completely different note....We have worms! Lots of Worms. Pokey has a Earthworm nursery, and after thinking that we had received bunk earthworm cocoons (only one hatched in 1 month) we have about 9 baby worms that we just transferred into the "soil room". They are now resting comfortable in their soil and have been fed....Why couldn't my child just have had an ant farm, I imagine those are much cleaner. =)
I'm praying for Eithene, Jonah, Noah, The Olives, Melissa, Grandma Julie, Patience, Strength, Determination.
I'm Hopeful for The weekend, for my claim, my hips, Pokey, costume shopping (!)
I'm Thankful for Pokey, for family, for a good cup of coffee, coupons, time, my PCP, every day.
Mommy Zebra / Gumby
First the appointment with the social security doctor seemed to go alright. He was a nice man and didn't pull or prod on anything as I was scared of, was very gentle and seemed very educated on my situation. Of course he is not the one making the determination and I know I still have Weeks, to months of waiting for an answer.
Pokey had a Dr. Appointment as well, just a check up, he is starting school in two weeks so I needed to make sure his immunizations were all up to date, thankgoodness they were so he avoided any shots. Hes now 43 inches tall and 40.5 lbs. We addressed the problems hes having with his hands/fingers and both agreed that we will wait on any sort of ring splints for now and should just work with OT and his teacher about these issues. His ankles are another story, they are just so loose and he falls so much. Even on the way to the doctor he was simple getting out of the car and just stepped down on his ankle sideways and came crashing down onto his knee and was left with a gaping wound on the knee. After his doc wiggled his ankles around he agreed that they need PT and possibly bracing as well and are sending us to Children's Hospital to get started to the PT and go from there. We just have to wait for the referral to go through. Pokeys Dad and I were both relieved as its tough every time your kid runs or walks fast for that matter having to say...."be careful please"...then 8 out of ten times you watch him fall or roll his ankles anyway! He gets frustrated and is always saying "my darn ankle always tries to roll under!" and we just tell him he has to pay attention because his ankles will do that easier than other peoples.
My visit to the New Hip Dr was successful, he at least offered to help me, something the last guy did not even attempt to do. He labeled my hip problems as Internal and External Snapping Hip ( Internal: the iliopsoas tendon snapping over the iliopectineal eminence or femoral head (with or without an enlarged iliopsoas bursa), The underlying abnormality may relate to the size of the iliopectineal eminence or the position of the lesser trochanter // External: caused by subluxation of the iliotibial band over the greater trochanter of the femur ) So in the end he wants me to go through a rigorous bought of PT then if that does not work he did offer injections for the pain, surgery to release the "bands" can be done but I am personally against any surgery as they have not been successful in the past so why bother, I just want to be out of pain.
The Spine Surgeon was a disaster! I originally has an appointment on 9/8. I called back and agreed to drive all the way to Edmonds because I could just not bear to go that long in this much pain. My PCP has already reviewed my MRI with me and he is positive that in the least a nerve block has to be done if not more so needless to say I was so close to tears when I got up to her "office" just to find out she has not been there in over 6 months! I wanted to break down, but I had Pokey and two of the girls with me so that was just not an option. All the office manager could tell me was that, it was their fault, they gave their new scheduler the wrong information. That was no comfort to me. Now I'm back to 9/8, if I make it that long. I tell ya this back pain is literally making me angry at times it makes me irritable and just mad. I just want it fixed or numb or what ever, I just want it to go away. Ive got some major things going on down there: "Multiple Schmorl's Nodes within the lower thoratic spine, Bulging of the disc at L5-S1 with associated mild degenerative disc disease and small right paracentral focal bulge...Small annular tear. Bulging of the L4-L5 dics diffusely and L2-L3 asymmetrically to the right, and rightward curvature of the lowar lumbar spine." Woo Hoo... September 8th please come sooner than later! Haha!
On another completely different note....We have worms! Lots of Worms. Pokey has a Earthworm nursery, and after thinking that we had received bunk earthworm cocoons (only one hatched in 1 month) we have about 9 baby worms that we just transferred into the "soil room". They are now resting comfortable in their soil and have been fed....Why couldn't my child just have had an ant farm, I imagine those are much cleaner. =)
I'm praying for Eithene, Jonah, Noah, The Olives, Melissa, Grandma Julie, Patience, Strength, Determination.
I'm Hopeful for The weekend, for my claim, my hips, Pokey, costume shopping (!)
I'm Thankful for Pokey, for family, for a good cup of coffee, coupons, time, my PCP, every day.
Mommy Zebra / Gumby
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